The following resources have been compiled for parents, carers and teaching staff who may be seeking further information about supporting children with a disability. A range of resources have been included but the list is not exhaustive. Since materials have been selected to represent differing perspectives, inclusion of a particular item on the list should not be taken as endorsement by KidsMatter.
Information about children with a disability
Australian Association for Families of Children with a Disability
This website provides links to Federal and State Government websites and national peak disability bodies as well as information relevant to parents and carers including access to services and supports and the Family Voices magazine.
- Australian Association for Families of Children with a Disability: http://www.cmag.org.au/resources/the-australian-association-for-families-of-children-with-a-disability.html
- National Disability Service: http://www.nds.org.au/
The Children, Youth and Women’s Health Service provides information on a broad range of physical and learning disabilities that can affect children and young people.
- Children, Youth and Women’s Health Service: http://www.cyh.com.au/Default.aspx?p=1
- Information on disabilities: http://www.cyh.com.au/HealthTopics/HealthTopicCategories.aspx?&p=306
National Council on Intellectual Disability
The National Council on Intellectual Disability is the national peak organisation representing people with intellectual disabilities and their families. It offers information and advocacy at national level. The website also contains links to the State and Territory level agencies.
- National Council on Intellectual Disability: http://www.ncid.org.au/
NSW Council for Intellectual Disability
The NSW Council for Intellectual Disability website offers easy to read information and fact sheets and an information request service and library.
- NSW Council for Intellectual Disability: http://www.nswcid.org.au/
Resources for use with siblings
Siblings Australia is a national organisation committed to providing support for brothers and sisters of people with special needs; including disability, chronic illness and mental health issues. Its website provides a range of information for and about sibling issues and links to support programs and services.
- Siblings Australia: http://siblingsaustralia.org.au/
Kids’ Health, a website produced by the South Australian Children, Youth and Women’s Health Service, provides high quality information for children about having a brother or sister with a disability.
- Kids’ Health:
- Information for children about having a brother or sister with a disability:
Siblink is a website created by the Association of Children with a Disability specifically for primary school children who have a brother or sister with a disability or chronic illness. It provides information on feelings and support services for siblings and has interactive games and spaces where siblings can share their own stories.
- Siblink: http://www.siblink.org.au/
Information, support and advocacy for specific disabilities
Deaf Children Australia
Deaf Children Australia provides information, advocacy, support services and educational resources that respond to the needs of deaf and hearing impaired children and their families. Their website contains specific information regarding the education and wellbeing of primary school-aged children with hearing impairments.
- Deaf Children Australia: http://www.deafchildrenaustralia.org.au/
Vision Australia provides a range of children’s services including support for blind or vision impaired children and their families before and during school. Their website provides information and resources for families and schools, links to other agencies and fact sheets specific to children who are vision impaired.
- Vision Australia: http://www.visionaustralia.org.au/
CP Australia is a national advocacy group that aims to promote the interests, rights, roles and wellbeing of people with cerebral palsy and similar disorders. The website contains access to a bi-annual newsletter, key government documents, and links to services in States and Territories.
- CP Australia: http://www.cpaustralia.com.au/
Cystic Fibrosis Australia
Cystic Fibrosis Australia. This website provides links to key support organisations in each State and Territory, and has information and resources that may be especially useful for teaching staff. School staff may be specifically interested in:
- Understanding Cystic Fibrosis:
- Cystic Fibrosis Teachers:
- Cystic Fibrosis Australia:
Epilepsy Australia offers counselling, support, and a national epilepsy helpline service. Their website provides high quality information about epilepsy syndromes and seizure first aid instructions.
- Epilepsy Australia: http://www.epilepsyaustralia.net/
The Epilepsy Action website provides tips for parents and carers and teaching staff. There is specific information for teachers and parents.
- Epilepsy Action:
- Information for Teachers:
- Information for Parents:
Muscular Dystrophy Australia
Muscular Dystrophy Australia offers support for families who have children with muscular dystrophies and are highly involved in funding new research on the condition. Their website provides extensive information about the many different conditions that are labelled muscular dystrophies.
- Muscular Dystrophy Australia: http://www.mda.org.au/
Down Syndrome NSW
Down Syndrome NSW is an independent charity run by parents of children with Down syndrome who offer support to families and information to the community. Their website contains a list of resources for school staff and offers a range of resources in Chinese, Arabic and Vietnamese. It also offers an extensive library which includes a range of titles on topics such as education, social development and behaviour, and parenting.
- Down Syndrome NSW: http://www.dsansw.org.au/
Down Syndrome Victoria
Down Syndrome Victoria is a not-for-profit, membership-based association seeking to represent the needs and views of Victorians with Down syndrome and their families.
- Down Syndrome Victoria: http://www.downsyndromevictoria.org.au/
Information and resources for parents and carers
Raising Children Network
Raising Children Network is national website aimed at helping families care for children has a clearly written set of articles on disability, providing information to help parents come to terms with their child’s disability diagnosis, manage family life and choose the right service. A number of video clips with individual parents’ stories are available.
- Raising Children Network:
- Articles on disability:
Association for Children with a Disability Supporting siblings
The Association for Children with a Disability Supporting siblings has produced 'When a brother or sister has a disability or chronic illness', an information booklet for parents and carers, which outlines common sibling responses from early childhood through to adolescence as well as strategies that promote coping and resilience.
- Association for Children with a Disability Supporting siblings:
- When a brother or sister has a disability or chronic illness - information booklet:
- Sibsheet for parents factsheet: